Managing Your Care - Round II
I again visited the Hutch this morning for my scheduled admission this morning and, once again, I’m back home. I needed platelets to be able to get my Hickman line placed. Since it’s a surgical procedure, I needed 50k platelets for the procedure to be safe. This apparently was once again not accounted for - part of the issue is that my counts should have bounced back by now on their own but haven’t.
So Reena and I turned back and came home again today.
Another week at home is nice, but are these delays in my chemotherapy going to put me at a greater risk for relapse? My oncologist doesn’t think so, but I am realizing more and more that I need to take the management of my care into my own hands…disappointing, but true.
In the meantime, Reena and I sit here in amazement at all of the love and support that the community and the country is showing us.
